Message from Kelly

Elias is well…actually amazing– making healing look like easy business. He is walking on his own now that his hip (where they took the bone for fusion) is healing, can feed himself, and hasn’t taken any pain meds since the first few days home from the hospital. He didn’t like how they disconnected “himself from himself”. He said he knew the pain was still there, but the meds tried to make his brain ”not care”. He hated the feeling so decided he was done being in pain and hasn’t taken them since. His scars are impressive…did I just say that? Jonny does the changing of the collar and most of the care Eli needs–actually I need to leave the room, nursing is soooo not my gift.
He is loving all the books on CD his loving classmates and friends have brought him… and the cards, and the books, and the games, and the journal, and the trips to the library for him, and the calls to update him on the latest goings on in the sixth grade, the visits, and the worry dolls…and so am I!
He tires out easily still and takes naps throughout the day. He has learned his limits and respects the process of recovery now after pushing the boundary a few times…his mama is very thankful for that lesson! But most of all I think he is grateful for the recliner his teacher Ms. Wilner is letting him borrow! I think she might have a fight on her hands to get it back.
Thanksgiving held special meaning this year for us. To feel thankful down to the core of my being…that part of myself that has laid under the protective barrier that was built around it–that I built with of course the help of our societal way…the ”me and my”. I truly can breath deeper some how…and it feels right. Below is my account, feelings, and gratitude. It is long, wordy, and corny…just like me. So read on if you dare.
It was painful at first, the overflowing wave of compassion and support that was crashing in around our family. It took all my energy to protect myself from it at first…it was an unfamiliar feeling and I was exhausting myself by fighting it. I truly did not know any better…my society and culture didn’t teach me any better. Deep down I wanted this lesson. Deep down under my conscious self, I called this lesson to me long ago.
I became curious the more exhausted I became. What would it be like to actually allow myself to feel this wave? To allow it to penetrate that barrier that I and society had so strategically placed around “me and my”? To allow myself to fully be able to receive? It is easy to give, but can it also be easy to receive? There must be something to it…some magic. Can we fully give if we can’t let ourselves fully receive?
That feeling is unexplainable…definitely painful in the beginning…then once allowed to pass through, there are no words that even come close to explaining the feel of the healing love, empathy, and compassion I allowed to rush in. Not just around myself, but I went one step further and let it through that barrier each one of us mamas place around our little families. I am so grateful I did…the lessons of the pure love of community my children are receiving are priceless.  I found one word though through this process of learning the art of receiving (the hardest lesson I have ever had to learn)…the name of the barrier, it’s called pride.
This new feeling brought on a wave within myself…gratitude beyond words:
I am so very thankful for the surgeon’s nimble and wise hands, his life work and dedication to the human body, his empathy, and soul. I am thankful for Dr. Micheal Allen and Linda and their compassionate and loving care in getting my son not just physically ready for surgery but emotionally as well with all their homeopathics and wise advice. I am thankful for those amazing Shriners–they are much more than men in funny hats driving little cars in parades– and for the nurses who set up beds for us and made sure our son was taken care of.
I am thankful for the Newton family and their amazing courage to share with me that Craig’s brother just happens to be one of the worlds top pediatric spinal surgeons…Peter Newton. Their calls to him and their support throughout has been amazing. Our visit to San Diego last summer was–for lack of a better work–karmic. I am thankful he connected us to Elias surgeon, Dr. Gupta…the other top pediatric spinal surgeon in the world. Just an amazing story that I needed to share, with a moral of course… Always share what you know…don’t ever let fear keep you from it…you never know what might become of that information! It just might turn out to be a priceless gem.
I am thankful for the strength of my partner Jonny. His invisible arms that stretch out, like magic, creating an area of peace in the middle of the storm. My favorite place to be…inside those arms. I am thankful for my daughters and their grace, thoughtfulness, and place within this family. They are my gauge in so many ways, the lessons they teach me everyday are priceless.
I am thankful for the caring nature of our family. The prayers that came our way reached us from the far corners of the world. The overwhelming love and care each one of my siblings bring to my life. Beans and cornbread, loving calls with arms that stretch a distance, and essential oil… They each have given me a gift that I carry with me throughout my journey…priceless they are to me! I am thankful for all my nieces and nephews and the pure joy it is to watch them blossom into amazing human beings– all with gifts that society will benefit from. I am thankful for the wisdom and nurture of the skilled hands of my sister-in-law Sherah and my mom-in-law Karen hold. They created a container and carried my little family when I could not…their nursing hands giving us the confidence to carry on. I am thankful for Brandon and the strength and hope he gave my son…his cousin. I am thankful for the Uncle Matty visit and the Grandpa prayers.
I am more than grateful for that band of friends of mine (do they know I consider them more than that?) that do not listen to me. They didn’t listen when I said, “I can totally do this on my own..no need to fuss, I got it under control…I even have time allotted to “break down” if need be…see look, I even have it marked on the calendar…see it says “allow self to break down”…I am being very responsible…I have it all planned out”. Could they really see through my barrier…my pride, my ignorance. Where did they get the strength to push? Could they see my plan had holes? I am thankful for those friends that have dropped back into our lives from rainy Portland, just in the nick of time…Everyone should have friends that don’t listen to them.
I am thankful for the nourishing meals that have come our way. Nourishing us physically yes, but more than that…they have nourished our souls. Again like magic, with each bite, compassion, love, prayers, light, and holding flood our bodies (this happens as long as I keep pride at bay). I am thankful to Mary and her white board with color coordinated pens. =)
I am thankful for Elias’ teacher Bonnie Wilner. Someone who knows our son as well or better sometimes than us. From the very first day Elias stepped through her doors I felt her presence hold my son–did I imagine that?…no. She was the reason I could drop him off every morning. She was the reason he was given the opportunity to be free and have a childhood filled with hikes, field trips, and yes… tree climbing. With out her…maybe I would have wrapped him in bubble wrap and never let him leave the house. It’s the reason we are at the school my children attend and the reason our path here in Fair Oaks began to unfold… all from that very first meeting with Elias’ arms wrapped so tightly around her waist. Was he really just seven? Were his angels telling me this is where he/we needed to be?
From that very first meeting a chain reaction happened…meeting fellow parents who would become more than friends, people that would help me raise my babies, meeting children who would become so comfortable in our home that they can open the refrigerator and help themselves.
These children who cut their hair off so their friend feels their support or stop by the night before surgery just to be with him, friends that sat with him at the hospital feeding him the latest gossip just as if nothing had changed–just seeing Eli and not the tubes, braces, and bandages. These children who fold cranes and make snowflakes and get well picture boards…priceless.
The amazing mamas who can get a quilt together in a matter of days and the sixth grade hands…past and present who put it together with love… Meeting teachers and staff that would take time away from answering phones to hug me and cry with me…that would hold my son, my whole family in their thoughts and prayers…really…am I dreaming or does this really exist? Some I have met only briefly…and yet they are there with a smile, a card, or a hug, even a meal…I am in awe.
I am thankful to all the arms that held us and continue to hold us, that let us be vulnerable, that let us cry, that let us laugh, that let us be participants and not just mere observers throughout this journey called life. That let us feel everything that accompanies this path…the joy, the sorrow, the love, the unknown, the anticipation, the grief, and most of all… the community. We are here to be human, yes?
I am thankful my fellow mamas…my sisters that help me raise my babies, that came to the hospital with miso and turkey broth to nourish my son. That stopped by my house and saw me crying over a frozen chicken–was I really crying about the chicken?– and took it from my hands with a hug and said “No worries”.  That laid their loving healing hands on my son when he was breathless with the pain… while my hands lay unknowing at my sides. Those sisters that came to sit with me, hold me, nourish me, bring me tea, soup, a joke, a laugh, a sigh, and a smile with chai on the side, and even stopped by my house and gave me a foot rub…did I really let her do that? Oh yea, I didn’t have a choice. The ”tea sister” and her agave. Those sisters who took my baby girls and made ginger bread houses with them and let them sleep over when this mama could not. And all those mamas who offered to take my girls, give them rides, help with them, care for them… They took time out of “life”…what do I say to them? I truly ache from my lack of words.
My fellow mamas…sisters from afar with their love reaching me and my family from the far corners of the world, I felt their thoughts, their love, their support and prayers like they were again standing in the room next to me. The calls, emails, cards, and letters filled my soul. I smiled thinking of some and the post partum memories with all our tiny babies filling a room…I smiled thinking of some and the trouble we got in before the thought of being a mother even existed!
I am thankful for my son and the lessons he has so patiently taught me. I am thankful for that higher being that sees a bigger picture…and a community that reflects that. And for the miracles we live with everyday…
At a time when a twelve year old is just beginning to look away from his family, is just starting to find his autonomy, discovering where he ends and his family begins…to then turn into the compassionate eyes of his friends and the empathetic arms of uncles, aunts, teachers, fellow mamas and papas that make up a community…to give him this gift of what the real world can resemble…what “self in community” really means…is priceless and I will forever be grateful to all. Like I said before…just like magic– if we allow ourselves to be vulnerable enough to believe it can be…
So here is to tearing down barriers and walls and the true work it takes to build community..to the hope it takes and the magic that truly does exist. I am not going to say, “I owe you one”. That would totally take away from the moment. Because I want to fully receive your unconditional gifts. That is what they are and I am not going to let my pride place conditions of ”pay back” on them. I am learning that if we consciously work toward seeing the other person in front of us there is a sense of magic that reaches to that protected core….thank you for that lesson you all are teaching me, as difficult as it is to learn…priceless. I truly am humbled….
blessings, peace, and all my true unconditional love,
kel
 

Elias Back Home

We visited Elias today at home for the first time. The change in his activity and awareness was incredible. He already seems like the same ol’ Elias again. He was smiling, laughing, actively moving around in his chair and having a great time. Jae Min and Caleb were both over for a while and he held up quite well. Caleb had gotten Elias a Pokemon card set for a gift and they played a game together. Elias won:
Elias Plays Pokemon

Elias Plays Pokemon Elias Plays Pokemon Elias Plays Pokemon Elias Plays Pokemon Elias Plays Pokemon Elias Plays Pokemon Elias Plays Pokemon Elias Plays Pokemon

Elias did start to tire after a while, but his progress was nothing short of miraculous. Jong Wan, Kelly, Jon and I all just stared in wonderment at how far he has come in such a short time.

Here is a short video of him playing Pokemon. You can get an idea of how much more active he is being already:

 

Last few shots of Elias in the Hospital

From Jon:

Here are a few more photos of the hospital wrap-up and the family together again. Don’t forget to include the picture of you so people will know who the legendary blog man is who put the site together and has been diligently feeding the site with content. It sounds like people all over the world are viewing Elias’ site, maybe you can share some stats.

I haven’t really had much in the way of Internet at the hospital so Elias hasn’t had a chance to respond to all the wonderful comments…in fact he hasn’t even seen his own blog yet…maybe tomorrow he will feel up to writing some comments back. We are pooped so I’m going to finally try to get a good night sleep and then focus on trying to catch up with work and school. There will be more updates coming…on Monday we take off the bandages so I’ll probably take a picture of his battle wounds…not sure though if that might be too much to show on the blog.

By the way, all the food that has been coming sure tastes great. I’m going to have to bug everyone for recipes next. Muchas Gracias!

Jon

Dave, Anna and Caleb in Elias' Room Last Rounds! Elias and Auntie Kelly and Jon
 

Elias Released from Hospital!

At around Noon today, just four days after his surgery, Elias was released from the hospital. The kids and I were playing hooky and happened to be headed by the hospital when he was released. First Kelly and Jon had to take him for a walk to prove he was ready:

Then Jon signed the paperwork:

Elias Leaves the Hospital

And then we escorted him downstairs in a wheelchair where he loaded into the family car:

Elias Leaves the Hospital

and sped off into the sunrise:

Elias Leaves the Hospital

Okay, so they definitely were not speeding. Kelly and Jon both shared some stories with us.

Kelly said that earlier in the morning that one of the doctors had come by and said to Jon, “Oh, no, he’s not getting out today. There is no way we could release him”. Kelly went in ready to take the day shift, but by then one of the other doctors, who had assisted Dr. Gupta on the surgery came by and said, “Of course he can get out today. Normally we would not let a patient out this early, but with the amount of support you guys have from friends and family, we know he will be just fine”. Kelly wanted to thank all of you that have been so supportive because you are the reason that Elias is back home today.

Kelly also mentioned that Elias had said right before the surgery, “I am not going to wear a halo and I will be out of the hospital in four days”. Looks like Elias is the kind of guy that likes to keep his word! It is truly and amazing recovery considering that the initial estimate is that he would be unconcious for four to five days at least.

Jon asked who he wanted to drive him home and he stated emphatically, “Dad!”. Not sure what that says about Kelly’s driving, but maybe he just wanted Mom in the back with him.

Elias was clearly still in a great deal of pain. Walking was very challenging for him, mainly because of the pain it caused (probably both in his leg and neck). He will have to walk regularly at home to keep his strength up and speed his healing.

 

Help with Meals for the Nuttings

If you would like to help support the Nuttings, but can’t bring a meal or just would prefer to help in another way, Mary Summers is organizing another option. You can drop off a bag of lunch items (yogurts, bagels and cream cheese, snacks from Trader Joe’s) at Kelly and Jon’s to help with the girl’s lunch preparations. If you would like to sign up for lunch snacks, please use the meals page to send a message to Mary Summers with your contact details. Mary will put you on the schedule and give you further details.

 

X-rays, Before and After

From Jon:

I’m staying the night (hopefully the last night) here in room #S-326 with Elias. This is a shared room with a cute little boy who looked like he was burned pretty bad. It was his bed time so when I got here so I haven’t had a chance to find out his story yet. Last night though, I met another cute little 18 month old boy who was burned really bad from falling into his mom’s extremely hot bathtub when she was finishing up dinner. Poor mom has been here at the hospital for almost 2 weeks now while her busy 18 year old daughter is trying to take care of her other young kids. I wish she had a great community like ours to help her out. The only thing I could think of doing for her was to give her some chamomile tea to try to help her relax.

Here are the latest X-rays from today. As you can see Elias almost has a bionic neck now. He was in pretty bad pain about an hour ago so he was given a shot of morphine to help. We’ll find out tomorrow if he’ll be ready to go home or not…I’ll give an update then. Until then, send a little bedtime prayer out to all the little boys and girls who are suffering around the world, and for strength to help the parents/family/friends to be their support.

Good night.

Jon
X-rays before:

EliasXray2 EliasXray1

X-rays after:
Xrays after surgery Xrays after surgery

 

Elias off Morphine

From Jon:

Elias (and I) slept much better last night. Kelly is now taking the day shift and said that Elias was moved to room #S-326 (I think that is the correct number). She also told me that he is going to get X-rays today, so naturally I am going to try to see if I can get some copies of those to post on the blog. The word is out that Elias will be released sometime tomorrow since he is no longer on morphine. He successfully made it over the first few hurtles…just a few more ahead while he adjust to the rest of his life with his new neck. Elias’ courage, strength, family and friends will help him run the race.

We are still amazed with the all the support you all have been for our family…you all are wonderful — thank you.

Jon

 

A Visit with Elias

Earlier today we had the chance to visit with Elias and Kelly. Margaret was kind enough to drive us down to the hospital from the school. The visitors included Margaret, Meta, Ian, Anna, Sydney, Caleb and Me (Dave). Megan and Justine were already at the hospital and Kelly was on duty (Jon now has the night shift).

Elias was just waking up from a nap when we arrived. He was still drowsy and it was clear that he is still disoriented from the pain medication. He was able to talk (quietly) and got some gifts from Ian, Caleb and Jakob. He smiled and chatted with us, but was still quite tired. He had just stood up for the first time before we arrived and was scheduled for his first walk later in the evening (may have happened already).

Kelly also shared some amazing news: Elias may be released as soon as Friday! Nothing is for sure yet because it depends on him being able to keep food down and being off the morphine. But the doctors seemed optimistic about it. That is pretty incredible considering that early estimates had him unconscious for at least 5 days! For any of you that have ever spent a night in the hospital, you know that it is hard to get a decent nights rest, so being home would be a wonderful thing.

If you do decide to visit, be prepared for Elias to be sleeping or otherwise indisposed. Kelly or Jon will let you know whether it is okay to see him.

Here are some photos of our visit. Note that we blatantly ignored the two person rule, but that should not encourage any of you to do the same. You may also notice (as Ian did) that Elias is now sporting his own, more comfortable, PJ’s, which he seemed happy about.

Note you can view this as a full-screen slideshow by clicking on the image below then clicking the “four arrow” icon in the lower right portion of the image. If you can’t view the images below (because you don’t have flash), you can always go directly to the site where these are posted

And here is a (very) short video of Elias from our visit:

 

First night out of ICU and Brandon’s Haircut

From Jon:

Last night was a bit challenging…Elias was in pain throughout the night and the morphine wasn’t quite enough. Today was much better. This morning he was put on vicodin and that seems to be helping with the pain. Elias stood on his feet for the first time since his surgery! It was only for a moment, but it was enough to get the nurse excited about the possibility of Elias taking a walk to the door later.

On a side note, one of the nurses told us how much she enjoys working for Shriners. She said that because Shriners pays for whatever insurance doesn’t, there is no need to rush patients out of the hospital…apparently some health insurance policies only permit a few days stay in the hospital and so nurses have to start preparing for the patient’s departure almost as soon as they get out of surgery. At Shriners the kids get to relax more and have fun while they heal. Shriners has a great entertainment program — Elias gets to pick out books, games, and videos from a library there, plus they have other events throughout the week. For example, on Friday night they are having movie night where they will show Kung Fu Panda, and on Saturday night there will be BINGO. If anyone wants to ever donate money to an amazing organization, this would be one.

Well, here are a few photos of visitors. Of course most know Ame, Haven, and Thejas, but the other guy is my brother Matt (aka “Uncle Matt”).

Also, here is a link to a YouTube video that Elias’ cousin Brandon made to show his support by getting a haircut (includes some video of Elias getting shaved as well):

I’ll try to edit the footage I captured of Ian and Thejas cutting their hair with Elias soon.

Our family is overwhelmed with gratitude to everyone for all the love and support. We are very proud to be part of such an amazing community. Thank you all so much!

- Jon -

 

Elias out of the ICU!

From Jon:

Great news! Elias is out of ICU. His recovery is progressing wonderfully and is now able to have visitors. He is still tired and in pain so we may have to give him a break from visits here and there, but he’d be happy to start seeing his friends. Please make sure visiting children understand that there are burn victims and so forth and to be sensitive to that and understand that there are amazing children here and to never judge a book by its cover. He may have about 2 visitors at a time, and others can play in the play room while they wait. He is on the 3rd floor, North Wing, #N 306.
Here are picture of Elias awake and moving out of ICU into room 306. He is very tired, but has trouble sleeping with all the various beeps and noises that the hospital makes. Hopefully, he’ll sleep well tonight. Uncle Matt is on his way from Fresno and should be here soon.

Elias out of ICU Elias out of ICU Elias out of ICU
Jon